I have a few more days (or nights) of data, some good, some bad. In general, I think the pad is working, but I’m still a long way from having it perfected.
One of the exceptional things the Relaxis company does is that a representative stays in touch for the trial period. Carl has called me twice since I got the pad (six days ago) and will call again today or tomorrow. These calls are useful. I can explain what’s been happening and he can offer suggestions for improvement or assurances that things are going as they should.
A drawback to this is that he may give advice based on not enough data. For instance, on our second call, after I’d tried the pad for two nights, I mentioned that the pad had reduced my symptoms but that I could still feel them a little. He suggested I try higher settings to see if that worked better, reminding me that I need to experiment with the settings to see what my response is.
That night’s slightly higher setting helped a little more and the next night (Saturday) I tried a little higher to see if it would help more. Umm… no. Using the higher setting gave me my worst night in a long time. It made everything worse. It was so bad, I was moaning. The nerve sensations reminded me of labor contractions, which I know how to handle. I had five kids without drugs and taught natural childbirth to others. I thought if I handled the RL waves like contractions, maybe I could get through them. But these waves were wildly intense. They only lasted about 4 seconds, but the next one started about 3 seconds after the previous one ended. With labor, at least you know the contractions are doing an important job, and it will all end once the baby is born. But this… there was no point and no end in sight, so in desperation, I took another full dose of Sinemet, then stood up for 30 minutes before going back to bed. I did not use the pad at that point, and happily, the medicine did the trick. I fell asleep around 4:00 and slept until 7:30.
So last night, I put the setting back to a lower level. No pills, just one episode of RL, and the pad made it go away almost immediately. But I never fell back asleep. I’ve been awake since 2:00.
That’s not unusual, although I’m never happy when it happens. That’s typical insomnia – adrenaline and hyper thoughts making me wide awake and ready to fight. But here I have a suspicion: that last night’s episode was caused by – or made worse by – the vibrations. I think this because in addition to the usual adrenaline, my whole body felt vaguely… tingly. Like the nerves were reacting to an electrical field or something. Or maybe that they were still vibrating slightly as an after-effect of the session with the pad.
I will discuss this with Carl when he calls, either today or tomorrow. I hope it’s tomorrow because I’d like to see if it happens again tonight. I’m kind of afraid that this reaction is a game-ender – the kind of side effect that means I can’t use the pad. I hope not, because as I said, I think the pad is working.
We still haven’t tried it for travel and I really want to see if it helps with that. We’re going to my daughter’s in San Jose on Saturday, and that will be our big experiment. Even if the pad helps only with car trips, it’s worth the price. Even better if it helps with plane trips. We won’t be flying for the rest of year, so I won’t have a chance to try that yet.
The experiment continues….